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HAE and holidays – exploring the world despite the disease
HAE & holidays: how to best prepare
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Get Active With Us, Not Just for HAE Day
On Saturday, May 16th, we once again celebrate the HAE Day
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The 6th Family Camp Highlighted the Importance of Sports
The 6th HAE Junior family camp, under the theme “Stronger Than HAE Through Sports,” took place from May 1 to 3, 2026.
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The Czech government adopts the National Strategy for Rare Diseases 2026–2035
The new Czech Strategy for Rare Diseases 2026-2035 has been adopted.
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Stronger than HAE through sports: our 2026 motto
Highlighting the importance of sports in helping HAE juniors grow stronger.
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Lectures, Art Exhibition Opening, and New Educational Materials For Rare Disease Day 2026
Rare Disease Day 2026 in HAE Junior
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Inclusive scholarships project for HAE juniors continues in 2026
The project goal is to support HAE juniors in developing their potential despite the limitations associated with this rare condition.
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HAE Junior has been helping the patient community for six years!
Sixth anniversary and wrap-up of the year 2025 at HAE Junior
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HAE Junior brings inspiration for 2026!
We are delighted to present the 2026 awareness calendar themed "My Inspiration".
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“Embracing Opportunities” at HAEi EMEA conference in Italy
Patient advocacy in the Czech Republic was presented as a best practice example.
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Raising HAE awareness among Czech medical students
HAE patient to present to students of the 2nd Medical Faculty at Charles University
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Back to school: Recommendations and Scholarships from HAE Junior
Useful tips from HAE Junior ahead of the new school year
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HAE Junior presented poster on pediatric patients’ needs
HAE Junior was proud to participate in the 14th C1-inhibitor Deficiency & Angioedema Workshop.
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Art exhibition by HAE juniors on display at scientific conference in Budapest
"My Inspiration" art exhibition at the 14th C1-Inhibitor Deficiency & Angioedema Workshop.
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Did you know that 16 May is HAE Day?
On Friday, 16th of May, we celebrate again the HAE Day.
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New patient platform: plasma proteins and why they matter
ČAVO launched a dedicated portal www.plazmaticke-proteiny.cz in Czech
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HAE Junior Announces New AI Project
HAE Junior taps into the power of multilingual AI to map the European HAE pediatric patients needs
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Rare Disease Day 2025: More Than You Can Imagine
HAE Junior supports Rare Disease Day
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Czech HAE patients can start using ‘Euro key’
HAE Junior applied to include HAE diagnosis on the list of eligible conditions for Euro keys in the Czech Republic.
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HAE Junior marks its 5th anniversary with a special digital campaign
HAE Junior celebrates its 5th anniversary!
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Global Leadership Workshop in Copenhagen and the new HAEi LEAP 2025 program launched
Registration is now open for the new HAEi LEAP 2025 program.
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HAEi’s ‘Women with HAE’ patient guide now also available in Czech
The Czech version of HAEi's patient guide "Women with HAE" is now available for download also on www.haejunior.cz website.
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Let’s celebrate HAE Day 2024 together – actively and creatively!
On 16 May, the whole HAE community is celebrating hae day :)
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The HAE educational camp, under the auspices of the Czech First Lady, highlighted the importance of siblings
The 2024 HAE Junior camp with the theme ‘Our Super Siblings’ took place between 12th - 14th of April in Prague.
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10 tips on how to manage studying abroad in spite of HAE diagnosis
Do you consider studying abroad for one or two semesters?
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Rare Disease Day 2024 highlights precious moments of patients with rare diseases
Precious moments as the main focus of this year's campaign
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Everything you need to know about HAE in one practical online guidebook
The newly translated guidebook helps the patients to get familiar with HAE.
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Let’s raise HAE awareness while sporting!
Did you know you can support charity projects while practicing your favorite sport?
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HAE Junior presents 2024 awareness calendar!
Calendar with drawings made by Czech HAE children
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Celebrate Giving Tuesday 2023 with HAE Junior
Giving Tuesday falls on Tuesday, November 28, 2023
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HAEi LEAP 2024 is opening registrations
Registrations are open until Sunday 12th November 2023
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Do you suffer from recurrent swelling? These 10 questions can save your life.
An ACARE questionnaire to help patients who suffer from swellings (angioedema) in their diagnosis quest
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Educational materials and recommendations for the new school year
Best wishes to all HAE juniors in the new school year!
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HAE juniors’ families joined the fourth educational summer camp
Educational summer camp 2023
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New poster aims to improve the quality of emergency care for Czech HAE patients
Raising disease awareness on HAE Day 2023
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HAE juniors raising awareness among Czech & EU lawmakers
HAE juniors artwork raising awareness among Czech and European lawmakers.
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Workshop „Achieving a better quality of life for people with rare diseases“
Virtual workshop on 5.10.2022
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Events
HAE Junior educational family camp 2022 was a great success!
Educational family camp 2022
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HAE Junior to participate in ECRD 2022 poster session
ECRD 2022 conference to take place online from 27 June to 1 July 2022.
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„Stronger than HAE“ art exhibition aims to raise rare disease awareness
"Stronger than HAE" art exhibition as part of the Rare Disease Day 2022 campaign.
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Stronger than HAE: Celebrate with HAE Junior Giving Tuesday 2021!
HAE Junior joins Giving Tuesday, which this year falls on November 30th, 2021.
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„Living with HAE during the COVID-19 pandemic“ patient survey results
Access to preventive treatment and education of patient families are the main patient priorities.
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Czechia now has its own „orphan drugs“ bill
The new legislation is valid as of January 2022.
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Preparing for the new school year according to HAE Junior
Back to school can be a challenging time for some HAE juniors and their parents.
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Memsource supports HAE Junior’s international activities
HAE Junior welcomes Memsource as a new partner.
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HAE Junior awarded the HAEro Games 2021 trophies!
HAE Junior held the second edition of HAEro Games in August 2021.
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New partnership with Počítače dětem to support HAE juniors
Education of HAE children is one of our priorities.
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„We have big dreams for HAE juniors“ exhibition
HAE Junior drawing exhibition.
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Informational leaflets for practical situations
Informational leaflets for HAE patients & their families.
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„We often experience personal lockdown, irrespective of governmental decisions.“
HAE Junior’s joins the Rare Diseases Day 2021 awareness campaign.
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Psychological support for HAE patient families
Living with HAE can be burdensome both for the patients and their families.
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